Bob Saget privately helped 9-year-old Scleroderma affected person and her household in his last years

Bob Saget privately helped 9-year-old Scleroderma patient and her family in his final years

2022-01-14 00:52:33

Two years earlier than his demise, Bob Saget quietly provided his assist to a household whose 9-year-old daughter is affected by Scleroderma, the identical illness that took the lifetime of his sister in 1994. 

Saget was a tireless advocate for these battling the illness, always doing charitable occasions and dealing on the Board of the Scleroderma Analysis Basis. On a number of events, he famous how dedicated he was to discovering a treatment after he was personally affected by the illness. The comic’s sister, Homosexual, died at age 47 of the illness years in the past. 

In line with TMZ, a part of Bob’s work with combating the illness included reaching out to a lady named Sophie Anne, who was identified with the illness when she was 7. Saget reportedly despatched the little lady personalised movies providing her consolation, assist and hope {that a} treatment might be forthcoming. 

The outlet notes that Saget understood higher than anybody that Schleroderma impacts not simply the affected person, however the entire household. In consequence, he made himself out there to the lady’s sister and fogeys as nicely. He spent greater than half-hour on the telephone with Sophie’s sister in order that she may write a paper on him titled “Bob Saget: My On a regular basis Hero.”

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Bob Saget died unexpectedly at age 65. 
(Emma McIntyre/Getty Pictures)

Months in the past, when Saget was performing in North Carolina, he comped Sophie’s mother and father, Martha and Jeff, tickets to one in all his exhibits. Along with paying for his or her tickets and meals, he invited them backstage after the efficiency. 

The “Full Home” actor clearly stored in contact. In early December, weeks earlier than his sudden demise, he shared a video on his Instagram that was a repost from the Scleroderma Analysis Basis’s web page that starred Sophie discussing the illness. 

“Sophie Anne is without doubt one of the causes I’ll ceaselessly be on the Board of Administrators and combat to search out the treatment to the illness Scleroderma that took my sister‘s life,” Saget captioned the publish earlier than including the unique textual content from the inspiration. 

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“Sophie Anne and her household are stuffed with hope, and so they encourage us each single day to remain laser-focused on discovering a treatment. Together with your assist, collectively we are able to make a significant distinction for Sophie Anne, her household, and all those that are touched by this illness,” the publish continues. 

Actor/comedian Bob Saget was a tireless advocate for Scleroderma before his death.

Actor/comic Bob Saget was a tireless advocate for Scleroderma earlier than his demise.
(Michael Tran/FilmMagic)

Saget served on the board of the San Francisco-based group for 25 years. The muse paid a tribute to the actor on its web site: “It’s with a really heavy coronary heart that we mourn the lack of our expensive pal and Board member, Bob Saget. Bob was a champion for scleroderma sufferers all over the place courting again to 1991 when he first turned concerned with the Scleroderma Analysis Basis, even earlier than his sister Homosexual misplaced her battle with the illness.”  

Saget was concerned with the inspiration’s fundraising occasion referred to as Cool Comedy-Sizzling Delicacies, in accordance with its web site. This was previous to his sister being identified with the illness. 

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Scleroderma means “exhausting pores and skin.” In line with well being consultants, it’s an autoimmune illness that causes the pores and skin to turn into infected, which then sparks the physique’s immune system to make an excessive amount of collagen. Well being consultants instructed Fox Information the illness varies in severity and price of development.   

Bob Saget helped a 9-year-old Scleroderma patient before his death. 

Bob Saget helped a 9-year-old Scleroderma affected person earlier than his demise. 
(Paul Archuleta/FilmMagic)

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“Scleroderma (aka systemic sclerosis) is a persistent autoimmune situation characterised by progressive thickening, tightening, and hardening of the pores and skin,” Dr. Wendy Chi, a rheumatologist for Mount Sinai Well being System in New York Metropolis, instructed Fox Information in an e-mail and added, “It usually begins on the fingers and face, however can unfold to contain extremities and trunk in sure sufferers.” 

Fox Information’ Amy McGorry contributed to this report. 


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